My son's name is Wyatt.
From time to time I will write about him because so much of him affects everything about me.
My baby was born 14 weeks early - this means we missed the ENTIRE third trimester. Men might not know truly what that means but women, especially mothers, will understand instantly the hell I suddenly found myself in. We spent more time in the hospital then I ever want to remember. But I do, every single day I do.
I never really knew what we would be facing down the line. I always made decisions based upon the fact that I wanted to know what the long term effects of drugs were on him that we were using or different machines but I think at some point I was so busy fighting to make sure that everyone (doctors, nurses, therapists) understood that I would FORCE them to do their job to more then the best of their ability I didn't stop and think.
He will be three years old in 34 days. In 10 days it will make 2 years since we left the hospital.
Now I have to truly look to the future and less to the past.
My little boy has feeding problems, swallowing problems, major sensory issues, global developmental delays, a brain that is only half the size it is supposed to be... and of course the newest diagnosis:
My son has Autism.
I knew he did. I think if I asked any parents of children with Autism they would tell me the same thing: they knew, long before the doctors or therapists wanted to confirm it, they KNEW.
I had to fight with the doctors to finally diagnosis it. They wanted to wait. Oh they couldn't possibly do it before he was 3 years old. Oh it could be all of these others things.
I knew.
I blame myself even though 'all the books' tell you not to. I wonder if I had been able to keep him longer inside if it would have prevented this. I mean he wasn't done 'baking' just yet. I will always wonder 'what If'.
I have changed my future goals more before of him. I have changed my world to make sure that I can be there completely for him because it is just he and I.
Some days are harder then others. Some days I cry while he naps because I don't know what to do for him. Other days I just hold him while he squeezes me tight and I whisper into his ear how much I love him.
I am not sure what kind of day today will be but I have hope that I will make it through the day without too many tears.
As the title says: I am an author, a mother, and always a woman. I write about the worlds and images in my mind. The voices that 'speak' to me are those of my characters. My little boy is the keeper of my heart and soul. And each day I learn more about what it truly means to be a woman. Welcome to my world and my journey. Blessed Be!
Showing posts with label Global Developmental Delays. Show all posts
Showing posts with label Global Developmental Delays. Show all posts
Thursday, February 9, 2012
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